394 hemophilia patients rue lack of drugs in hospitals

Hemophilic patients of Kashmir have appealed J&K Health Minister Bali Baghat to direct concerned authorities to ensure availability of medicines at government hospitals.
394 hemophilia patients rue lack of drugs in hospitals
File Photo

Hemophilic patients of Kashmir have appealed J&K Health Minister Bali Baghat to direct concerned authorities to ensure availability of medicines at government hospitals.

"The authorities have put at risk the lives of 394 hemophilic patients – including 268 in Kashmir division – by not procuring the required medicines from past several months," said a group of hemophilic patients led by Adil Ahmad.

They said that the Principals of Government Medical Colleges – both at Jammu and Srinagar – have not given the requisition for the same to the State Medical Supplies Corporation.

"Our two brothers are admitted at a Srinagar hospital. They have not been provided the medicines as authorities there claim that no medicines are available," they said.

"The J&K High Court had directed health department to keep the Factor available 24 hours in hospitals. But unfortunately, in complete disregard to the Court directions, the anti-hemophilia Factor remains unavailable at the hospitals," they added.

They said that a 12-year-old hemophilia patient died at SMHS Hospital here on February 1, 2016, allegedly due to non-availability of anti-hemophilia Factor.

Hemophilia is genetic disease in which there is excessive bleeding even with a minor injury as patients lack body mechanism of blood clotting.

The medicine helps in blood clotting. According to doctors the patients undergoing treatment need it regularly and their lives could be at risk if they are not given the required medicines.

The medicines named Factor VII costs around Rs 1 lakh, while Factor IX costs around Rs 10,000. The 394 patients are registered at different hospitals of the state for regular treatment.

Their number could be much higher as many of them are not registered.

"The medicines, Factor VII and Factor IX also known as Anti-Hemophilic Factor (AHF), which a patient needs in case of bleeding even due to minor injury, are not available in the state's hospitals for the last more than 7 months," said a senior doctor.

Factor VII and Factor IX, if not given timely even in case of minor bleeding can result in death of the patient.

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